Health, Wellness and Aging with Disability Health, Wellness and Aging with Disability
Archived
Page (provided for
reference, but no longer updated)
Active Health Care Consumer Strategies
Be a Savvy Health Care Consumer, Your Life May Depend on it!1998, 95 pages, (updated 4/8/98)
MemoryMinder:
Personal Health Journa, by Frances E. Wilkins, D. Wilkins,
Paperback Revised edition (August 1993)
Memory Minder.
Checklist format, spiral binding, provides an organized and accurate way to track vitamins, herbs, medications, diet, exercise, symptoms, progress, and all the other factors that make up your personal health picture. It's been called "a service record for your body!"
The
Intelligent Patient's Guide to the Doctor-Patient Relationship:
Learning
How to Talk So Your Doctor Will Listen, by Barbara M. Korsch,
Caroline
Harding, Hardcover - 304 pages Reprint edition (September 1998), Oxford
Univ
Pr (Trade).
Looks at the ways doctors and patients communicate with each other, and how both sides of the interaction can be improved. Barbara Korsch talks about being belittled and patronized in interactions with her doctor--and he knew she was a fellow physician! This guide, based on Korsch's 50 years of research into doctor-patient dialogue, takes you, through each step of your interactions with physicians. It illustrates how to start on the proper note and continue until you get the information and treatment you need.Tells how to ask the right questions, understand the answers, and how to survive managed care. Also offers insight into the doctor's side of the relationship, showing how doctors are trained to be task oriented and how their natural human sympathy is discouraged at work.
Preparing
for Surgery : A Mind-Body Approach to Enhance Healing and Recovery
by William W. Deardorff, John Reeves (Contributor), Paperback - 160
pages (June 1997), New Harbinger Pubns.
Even a relatively minor operation is still an assault to the system--and a source of anxiety and stress. Studies and research suggest that mind-body preparation for surgery can help relieve anxiety and reduce the severity of physical symptoms following an operation. This workbook distills the results of these studies into a usable, supportive guide.
Take
This Book to the Hospital With You, by Charles B. Inlander, Ed
Weiner (Contributor), Mass Market Paperback - 328 pages Reissue edition
(October 1997), St Martins Mass Market Paper. (added 12/28/99)
Advice for a planned or unexpected hospital stay, it arms consumers with the tools to manage the dangerous pitfalls and medical minefields of hospitalization.
Aging With Developmental Disabilities: Women's Health Issues - (added 6/00)
Aging With
Disability, audio cassette, April 1994, approximately 60
minutes (added 11/20/97)
Informal discussion with first-year medical students.
Aging with a Disability Physical
Medicine and Rehabilitation Clinics of
North America February 2005 (Vol. 16, Issue 1)
posted 01/29/05
Table
of contents and short abstracts (word file)
Aging with Disability - summary is adapted and distributed for use with permission. The material was excerpted and adapted from an application submitted by: Rancho Los Amigos National Rehabilitation Center in collaboration with The University of Southern California and The University of California, Irvine, to NIDRR for a RRTC on Aging with a Disability in August 1998. (added 2/5/01)
Aging with Disability: Another Advocacy Priority, January 1990, 2 pages, (added 11/20/97)
One of the first consumer focused articles broadening the aging with disability issue beyond polio and spinal cord injury. Details personal experience, sometimes humorously, of aging with cerebral palsy and the frustration with the medical community's lack of knowledge. Advocates for more research, more involvement of people with disabilities and more advocacy to address the results of aging with a disability.
Aging with a Disability: Conclusions after a Visit to the USA Bergen, March 1998, by By Janicke Kilian and Terje Binder, A short version of a Norwegian report (added 4/8/98)
Aging with a Disability: Educating Myself, in Generations, Journal of The American Society on Aging, Vol. XVI, No. 1, Winter 1992. (added 11/20/97)
A more in-depth article than "Aging with Disability: Another Advocacy Priority." Details personal experiences about the lack of information related to aging with a disability. Applauds Trieschmann's 1987 book, Aging with Disability, as a first step to identifying the real problems facing people with disabilities who are middle-aged or nearing retirement. Lists specific questions in key areas (research, prevention, nutrition and advocacy) which need answers.
Center for Disability Issues and the Health Professions ( added 11/99) at Western University of Health Sciences is working to enhance health professions education, and to improve access for people with disabilities to health, health education and health care services. The Centers primary goals include:
1.) improving health professionals' understanding of the "whole" person with a disability, through the development of curriculum that is integrated into the students' education at pre- and postgraduate levels,Depression: What The Consumer Needs To Know (added 4/8/98)2.) increasing the number of qualified health professionals with disabilities through development and implementation of a recruitment program and University support services,
3.) developing and delivering training for people with disabilities regarding effective access, use and communication so that they may become active participants in their health care.
4.) developing and distributing research on community-based health education, prevention and health care services for people with disabilities.
Getting
over Getting Older :An Intimate Journey, by Letty Cottin
Pogrebin, Paperback - 336 pages (May 1997), Berkley Pub Group. (added
12/28/99)
No disability -specific content, but a good read. Faced with turning 50, Letty Cottin Pogrebin, founder of Ms. says her reactions ranged "from astonishment to anger, from confusion to curiosity, from denial to disgust." Using herself as a compass and adding many other well- known voices, Pogrebin's irreverent book takes on friendship, sex, love, dieting, mothering adults, the physical and emotional depredations of aging, and mortality. Rather than stubbornly toeing the line on spurning plastic surgery, for example, she thoughtfully explores "the tension between artificiality and authenticity." In the end, she concludes, one can devote one's remaining years to lamenting and running after lost youth or put that time to far better uses.
Health, Wellness and Aging with Disability, 1995, Revised 1998, (updated 4/8/98)
Later Life Effects of Early-Life Disability: Comparisons of Individuals Aging with Polio, Spinal Cord Injury and Stroke to Age-Matched Controls (added 4/28/98)
Final Report, by Margaret L. Campbell, Ph.D., August 1, 1994, Funded by: The National Institute on Disability and Rehabilitation Research. Published by: The Rehabilitation Research & Training Center On Aging with Disability Rancho Los Amigos Medical Center To order, $25.00 which includes shipping and handling (California residents add 8.25% tax) to: Los Amigos Research and Education Institute, P. O. Box 3500, Los Amigos Station Downey, California 90242
Mental Health Services
Knowledge Exchange Network (added 1/4/98) The Knowledge
Exchanged Network
(KEN) is a source of information and resources on mental health.
Telephone 800-789-2647.
Personal
Perspectives on
Giving: On Giving Out,
Giving In,
Giving Up and – Giving Back by by Linda Gonzales 01/26/05
http://www.crowdbcm.net/Gonzales-on-Giving.htm
Quality Of Life While Aging With A Disability - by Bryan J. Kemp, Ph.D., Rancho Los Amigos National Rehabilitation Center And The University of Southern California 2000. (added 2/5/01)
Rehabilitation Research and Training Center on Aging with a Disability - (added 12/28/99) one of two rehabilitation centers located at Rancho Los Amigos National Rehabilitation Center in Downey, California. The second Center is the Rehabilitation Research and Training Center on Aging with Spinal Cord Injury. Both Centers:
Rehabilitation Research and Training Center on Health and Wellness - Conducts research and training to support the health and wellness of persons with long term disabilities. Address the conditions of cerebral palsy, multiple sclerosis, post-polio syndrome, amputation and spinal cord injury, but the web site is of value to all people with disabilities. The primary host of the Center, the Oregon Institute on Disability & Development at Oregon Health & Science University in Portland, Oregon. (added 8/16/01)
The Center address these priority areas:
Editon II is available at http://www.usc.edu/go/awd .
ABLEDATA - ( added 11/99) provides information on assistive technology and rehabilitation equipment available from domestic and international sources. Its database contains:
Computer
Resources for People With Disabilities : A Guide to Exploring Today's
Assistive Technology, by the Alliance for Technology Access,
Paperback 2nd edition (September 1996), Hunter House. (added 12/28/99)
Provides an overview of the state of the art of redefining human potential through computer-assisted communication. A vast clearinghouse for the different technologies available and their applicability to the lives and tasks of people with various disabilities.
Med-Sell - helps people buy and sell USED medical equipment and find accessible HOUSING. This includes: wheelchair equipped vans, scooters, hospital beds, canes, walkers, Sleep Apnea machines, TENS units, ramps, hand controls, hoyer lifts, wheelchairs, electric wheelchairs, transfer benches, commodes, cushions, standing frames, stair glides, curb-siders, doctor's office equipment and hospital medical equipment.
The
Manual Wheelchair Training Guide, by Anita Perr, Peter Axelson,
Jean
Minkel, Denise Chesney, Paperback - 141 pages (October 1, 1998)
Alternative &
Complementary Therapies site of the American Caner
Association. (added
12/28/99)
Rosenthal Center for Complementary and Alternative Medicine, Columbia University - created in 1993 was one of the first centers at a major medical school devoted specifically to research, education and training in complementary and alternative medicine. (added 12/28/99)
WellnessWeb Alternative/Complementary Medicine Homepage - (update 01/16/05, added 12/28/99)
Ethnic and Cultural Diversity - Equity and Access
Bridging
the
Barriers of Telehealth to Underserved Populations: Barriers and
Opportunities
1998 Report examines the unique characteristics and risk factors among children and the elderly, minorities, inner city and rural poor, and persons with disabilities that argue for special consideration during the development and deployment of communications technologies. This workshop sought to identify several broad areas that must be addressed if telecommunications services are to reach these underserved populations in the near future.National Coalition of Hispanic Health and Human Services Organizations (COSSMHO) - (added 12/21/00)
Focusing on the health, mental health, and human services needs of the diverse Hispanic communities in the United States, COSSMHO's membership consists of thousands of front-line health and human services providers and organizations. COSSMHO attempts to connect communities and create change to improve the health and well-being of Hispanics in the United States.New York Online Access to Health (NOAH) - (added 12/21/00)
NOAH brings health information to an underserved population of consumers, many of whom are Spanish-speaking. Resources about several different health topics, ranging from aging to tuberculosis are available in both English and Spanish. NOAH's bilingual service is available in 100 partner libraries throughout New York City's five boroughs and Westchester County, and from additional sites on the CUNY campuses.Office of Minority Health Resource Center - (added 12/21/00)
Department of Health and Human Services Office of Minority Health established the Office of Minority Health Resource Center in, serves as a national resource and referral service for minority health issues. Comprehensive databases on a wide variety of health topics affecting minority populations. One database includes extensive information on funding and grant resources that can help support minority health projects.Tribal Connections in the Pacific Northwest - (added 12/21/00)
Provides assistance to 16 tribes and Native villages in Alaska, Idaho, Montana, Oregon, and Washington. The goal of the project is connecting the tribes to the Internet with the aim of providing access to health information.
Exercise: A Guide from the
National
Institute on Aging - a guide for anyone who wants to take
the first
steps toward an active lifestyle. The scientists and doctors at the National Institute on Aging at the National Institutes of Health produced
this
guide. It provides information about how to exercise, good nutrition,
and tips
on establishing and maintaining a regular exercise program. People with a variety of disabilities and
activity limitations can easily adapt, tailor and use this information.
posted 01/29/05
Fitness Equipment online:
Fitness Management's Fitness Word - (added 2/3/00), three articles:
United States Cerebral Palsy Athletic Association - (added 12/28/00) provides individualized sports training and competitive opportunities for athletes with cerebral palsy, or other related challenges, such as traumatic brain injuries or stroke.
Recreation A Great Way to Be Active - (added 6/00).
Biomarkers:
The 10 Keys to Prolonging Vitality, by William Evans,
Irwin H. Rosenberg (Contributor), Jacqueline Tompson, Paperback Reprint
edition (August 1992), Fireside.
Conditioning With Physical Disabilities, by Kevin F. Lockette, Ann M. Keyes, Paperback - 272 pages (May 1994), Human Kinetics (T).
Pt. I. Components of Physical Conditioning
Ch. 1. Exercise Readiness Assessment
Ch. 2. Strength Training
Ch. 3. Aerobic Training
Ch. 4. Flexibility Training
Pt. II. Disability Profiles and Conditioning Programs
Ch. 5. Conditioning With Cerebral Palsy, Stroke, and Head Injury
Ch. 6. Conditioning With Spinal Cord Injuries, Spina Bifida, and
Poliomyelitis
Ch. 7. Conditioning With Amputations
Ch. 8. Conditioning With Other Physical Disabilities
Pt. III. Conditioning Exercises and Classes
Ch. 9. Upper Extremity Exercises
Ch. 10. Abdominal and Trunk Exercises
Ch. 11. Lower Extremity Exercises
Ch. 12. Elements of a Good Exercise Class
Appendix A: Accessible Exercise Equipment
Appendix B: Fitness and Sports Associations
Glossary
Sources
Evaluation of the Book
Prime
Moves : A Step-By-Step Fitness Program for a Healthier Life, by
Diane Edwards, Kathy Nash (Contributor), Paperback - 216 pages
(November
1992), Avery Pub Group.
Seat-A-Robics (added 11/20/97)
Sit and Be Fit:Pre-Aerobic 2, Video Release Date: March 23, 1998, NTSC format (for use in US and Canada only), Color, NTSC, Number of tapes: 1, Rated: NR, Starring: Mary Ann Wilson, et al. Run Time: 75 minutes.
Sit and Be Fit:Pre-Aerobic 3, Video Release Date: March 23, 1998, Run Time: 37 minutes, NTSC format (for use in US and Canada only), Color, NTSC, Number of tapes: 1, Rated: NR, Starring: Mary Ann Wilson, et al., Run Time: 80 minutes
Home Modifcation Resource Center - (added 12/28/99) offers practical strategies and materials for policymakers, practitioners, consumers, manufacturers, suppliers, and researchers. Focus includes:
Accessible Exam Table - (added 12/16/00)
Directories from MEDLINEplus (added 2/14/02)
Merck Manual of Diagnosis and Therapy - (updated 8/15/01)
Nutrition - Tufts University Nutrition Navigator helps sort through the large volume of nutrition information on the Internet and find accurate, useful nutrition information. (updated 8/15/01)
Medication Assistance Programs - (added 12/17/00) provides detailed information about each company's assistance program, including the company's name, the program's address, the telephone and fax numbers, guidelines and notes, the health care provider's role, the patient's role, information needed to initiate enrollment, information regarding the amount of medication and how it is dispensed, refill information, the estimated response time, and limitations of the program.
For a $5 processing fee for each medication requested, the http://www.themedicineprogram.com site will assist the patient in the enrollment process. Patients without access to the Internet can contact a health care provider or a pharmaceutical company to receive information about medication assistance programs.
Other related sites include:
1999-2000 Directory of Prescription Drug Patient Assistance Programs - (added 12/17/00)Medical Letter for Drugs and Therapeutics - (updated 8/15/01)
MEDLINEplus Drug Link - (added 12/17/00)
Medwatch - safety information on the drugs and other medical products regulated by the U.S. Food and Drug Administration. (updated 8/15/01)
U.S. Food and Drug Administration - (added 12/17/00)
U.S. Food and Drug Administration Consumer information - (added 12/17/00)
ClinicalTrial. Gov - (added 6/00) provides information on more than 4,000 Federal and private medical studies, the location of clinical trials, their design and purpose, criteria for participation and information about the disease and treatment being studied.
Removing Barriers to Health Care: A Guide for Health Professionals - (added 6/00).
Self-Care Central: (added 12/28/99, updated 3/3/01)
Information on over 800 national, international and model self-help
groups that cover a broad range of illnesses, addictions, disabilities,
parenting concerns, bereavement and many other stressful life
situations. Includes websites
and/or e-mail addresses for over 70% of the
nat’l/int’l groups listed!, chapters on starting and running a mutual
aid group, to include section for professionals on their potential role
in helping, how to develop online discussion (listserv) groups and
newsgroups, summarizes research outcome studies reflecting the value of
self-help groups.
Health information on specific destination - (added 12/28/00)
Travel Tips for Older Americans - (added 12/28/00)
U.S. State Department, Bureau of Consular Affairs - Travel Tips for Older Americans
Allison Brown's RESEARCH healthpage for older women with disabilities - (added 6/00) designed to be both a resource for older women with disabilities and an exploratory aid for research. Covers health promotion and related issues, with a particular emphasis on aging with certain developmental disabilities, ncluding mental retardation, cerebral palsy, and Down Syndrome.
ACCESSIBLE MAMMOGRAMS - An accessible system is becoming more widespread. Older systems required technicians to hold on the individual in the standing position, but with Contour Mammography System, the individual can remain seated in a wheelchair while a tilt arm conforms to her position. Approximately 400 of the Contour systems are in use. Call Bennett X-ray Technologies the manufacturer to locate one in your mayor 516-691-6100 (NewMobility / January - February 1995).
Breast Health Access Project for Women with Disabilities (added 3/28/99) first of its kind project in Berkeley, California that provides potentially lifesaving services to a population of women whose breast health needs have, until now, been overlooked. BHAWD c/o Alta Bates Summit Medical Center, Herrick Campus, Rehabilitation Services, 2001 Dwight Way, 2nd Floor, Berkeley, CA 94704 Voice (510) 204-4866 TDD (510) 204-4574 FAX (510) 204-5892.
Center for Research on Women with Disabilities (CROWD) (added 11/20/97) A research center that focuses on issues of health, aging, civil rights, abuse, and independent living. Works to promote, develop, and disseminate information to expand the life choices of women with disabilities so that they may fully participate in community life. Researchers develop and evaluate models for interventions to address specific problems effecting women with disabilities. Offers recent research findings and list current, past and future research projects.
Disabled Women's Network
(DAWN) Ontario a progressive,
volunteer-driven, feminist organization
promoting social justice, human rights & the advancement of equality rights through
education, research, advocacy, coalition-building, resource
development, &
information technology. updated 01/29/05
Federal Resource Center for Women with Disabilities (added 8/26/99) new resource plans to offer summaries about critical health issues for a variety of people with disabilities, including physical, neurological, hearing, speech and visual impairment. Includes links to sites sponsored by private sector advocacy groups, and special information on the unique needs and concerns of minority women with disabilities. Their toll-free number 1 800 9994WOMAN connects to a health information specialist who will refer the caller to the right source of information. Women and their health care providers can also order fact sheets, brochures and other printed materials by phone. Information specialists are available on its toll-free telephone service from 9 a.m. to 6 p.m. eastern time.
Focused Investigation on Risks of Osteoporosis - The Effects of Age, Disability and ERT on Bone Mineral Loss: A comparison of Female Polio Survivors and Age-Matched Controls, Margaret L. Campbell, Ph.D., Principal Investigator; Darryl A. Quinn, M.A., Graduate Research Assistant; and Victor G. Ettinger, M.D., Bone Diagnostic and Treatment Centre, Long Beach, CA . 1994 (updated 11/02)
GET A CERTIFIED MAMMOGRAM - For a safe and reliable mammogram, make sure you go to an FDA-certified facility. The agency sets strict standards fro equipment, personnel, record-keeping, and reporting results. To confirm certification or to find a certified facility in your area, call the Cancer Information Service at 800-4-CANCER. Or visit the mammography listings page on the FDA's web site. Source: Consumer Reports on Health, March 1998
Mammograms (added 11/20/97)
An accessible system is becoming more widespread. Older
systems required technicians to hold on the individual in the standing
position, but
with Contour Mammography System, the individual can remain seated in a
wheelchair
while a tilt arm conforms to her position. Approximately 400 of
the
Contour systems are in use. Call Bennett X-ray Technologies the
manufacturer
to locate one in your area 516-691-6100 (NewMobility / January -
February
1995).
Health
Promotion for Women with Disabilities - Villanova University
College of Nursing’s (added 11/02) site contains a variety of topics
related to health and health promotion important for women with
disabilities:
Pap smear e-mail service - sign up to get a reminder when it is time for your annual pap smear. Scheduling and having a Pap smear every year is one of the most important things a woman can do to help prevent cervical cancer. (added 12/28/99)
Every Woman's Essential Guide, by Alan R. Gaby, Paperback - 320
pages Reissue edition (May 1995), Prima Pub (P). (added 12/28/99)
Covers what osteoporosis is, why it is so prevalent, what women can do about bone loss, and how diet and exercise affects this condition.
National Osteoporosis Foundation - (added 12/17/00)
Partners in Health Care: Women with Disabilities & Their Health Care Providers - (added 6/00).
Reproductive Health for Women with Spinal Cord Injury: Part One-The Gynecological Examination (added 1/4/98)
Table Manners: a Guide to the Pelvic Examination for Disabled Women and Healthcare Providers. Ferreyra, F. & Hughes, K. June 1992, 3rd printing, 1991. CONTENT: Provides specific information regarding reproductive health care with physical, visual, and hearing disabilities. Includes information on alternative positioning for examination, transfer to the examination table, and other specific considerations. COST: $1.50, make check payable to Planned Parenthood Alameda/San Francisco or indicate type of credit card, MasterCard or Visa, credit card number and expiration date. Credit card purchases require an additional 3% charge, based on the total order. Sales tax, appropriate to your county, applies only to California residents. SEND: Sex Education for Disabled People, Planned Parenthood Alameda/San Francisco, 815 Eddy Street, San Francisco, CA 94109. INFO: 415-441-7858. Entered: 9/29/95
Women's Health and Aging with Developmental Disabilities - (added 6/000 Electronic Discussion Group on. To subscribe to the forum, send email message to Listserv@listserv.uic.edu, and type: Subscribe WomHlthAging-DD <YourFirstname> <YourLastname>
Women With Disabilities: HEALTH & AGING - (added 6/00)
This important new contribution to the field grew out of a 1994 conference sponsored by the National Center for Medical Rehabilitation Research, The Health of Women With Physical Disabilities: Setting a Research Agenda for the '90s. Women With Physical Disabilities exposes a diverse subject that, until now, has received little to no attention.The volume is unique in that it does not overmedicalize the issues. Rather, it concentrates on the point of view of women with physical disabilities. Many of its contributors are researchers, clinicians, and advocates with disabilities who are in charge of their lives and their bodies and who are active members of the research, health care, and disability communities.
The book targets multiple audiences: women with disabilities, health providers, researchers, and families and friends of women with disabilities. Women with disabilities will identify with many of the described experiences, may find some new information and perspectives, and will have reinforced the need to move ahead with strong, loud, and continued advocacy for change. Health providers should benefit by an expansion of their clinical knowledge and by becoming aware of some of the practical and quality-of-life issues of concern to women with disabilities. Researchers will find new ways of analyzing the issues raised and new ideas for broadening the scope of their investigations to ensure that their research has practical applications. There are many important recommendations in the book for new research priorities.
The 33 articles cover a range of topics, including an exposition on wellness in the context of disability, an overview of sociodemographics of women with disabilities, a look at the effect of combining disability status with cultural minority status, sexuality, reproduction, contraception, obstetrics, parenting, stress and its impact on physiology, approaches to stress management, bowel and bladder management, and exercise and nutrition programs to enhance physiological and psychological fitness. A few of the articles are technical, but most are easy to read.
Carol J. Gill's "Becoming Visible: Personal Health Experiences of Women With Disabilities," eloquently explores experiences of oppression of women with disabilities. She establishes the importance of women protesting their invisibility in the health system in terms of treatment options and in the research that guides those treatments.
The chapters on sexuality deal with what is known and not known about sexual response, reproductive health, pregnancy and delivery, as well as the psychosocial issues of sense of self, relationships, parenting, sexual orientation, abuse, gaining access to health care systems, and the politics surrounding the sexuality of women with disabilities. Sandra Welner's article addresses several critical issues, rarely discussed: the negative effects of taking estrogen and progesterone for women with certain disabilities, the effect of disability on the detection and treatment of sexually transmitted diseases, and the experience of menopause. Questions addressed are increasingly frequent topics of conversation among disabled women "boomers' " For example, as we age with disability and enter menopause, what will the effects be of many years of decreased weight bearing and limited participation in aerobic exercise? Are we more vulnerable to significant osteoporosis? What will the inevitable changes in tissue, strength, skin elasticity, reduced blood supply to the skin and soft tissue, and temperature sensitivity mean to us?
Carol Gill's noteworthy essay on dating and relationship issues articulates common and painful difficulties encountered by many with disabilities in establishing intimate relationships. She explores issues around societal devaluation, physical and verbal abuse, family disapproval of relationships, and the practical and financial burdens placed on couples by misguided public policy.
Harilyn Rousso's "Sexuality and a Positive Sense of Self " shares some good and bad news regarding adolescent girls with disabilities. The social scene is still difficult as girls continue to be excluded, rejected, and viewed as asexual based on the mythical standard of physical perfection. The good news is that today's girls are tougher, more self-confident, and more creative in dealing with negative assumptions about their social potential. These girls recognized, earlier than many of their older peers, that the source of oppression was outside themselves. The problem is societal prejudices, not their bodies or their abilities.
Corbett O'Toole's "Disabled Lesbians: Challenging Monocultural Constructs" explores the barriers that disabled lesbians encounter both within the disabled women's community and the health care world. The "Stress and Well-Being" section treats a subject one doesn't see written about a great deal: stress related to dealing with disability. It explores the relationship between the physiological basis of the stress response and physical and emotional health and traditional approaches to stress, as well as new approaches to alleviating stress.
This book does a great service in recording in one volume a representative sampling of what is known, but more important what is not known. Many of the articles leave the reader frustrated and wanting more data, information, and strategies. This work sounds a blaring alarm: "pay attention to these areas and devote greater resources to investigating many of the issues critical to women with disabilities' " If this is to happen, researchers, providers, and women with disabilities must join forces and be the sounders of the alarm, also.
We must make our needs clearly, assertively, and repeatedly known in areas of essential services and resources, including education, prevention, research, and public policy change! We need to advocate for attention and solutions so our concerns and our urgency for these services and resources are not only understood but become a priority for many. So what do we want? We want these issues to get attention, and we want it now!
Reviewed by June Isaacson Kailes, Disability Policy Consultant, author of "Health, Wellness and Aging with Disability," and "Be a Savvy Health Care Consumer, Your Life May Depend on it!"
Review published in JOURNAL OF DISABILITY POLICY STUDIES
Volume 8, Numbers 1 & 2, 1997, pp 251 - 254
jik@pacbell.net
© 1997 - 2018 June Isaacson
Kailes,
Disability Policy Consultant, All Rights Reserved.
Created
11/20/97 | 01.2.13