Kailes, J., Delgado, H.
(1974). "Sex Counseling
for Those with Spinal Cord Injuries." Social Casework 55(10): 622-627
Kailes,
J. (1981). Sexuality and Disability and The Social,
Political & Economic World of Disability, Wright Institute of Los
Angeles.
Kailes,
J., Katz, A.,
Martin,
K.,(1982).
Personal and Family Counseling. A
Handbook of Services for the Handicapped.
Greenwood Press.
Kailes,
J. (1989). "Aging With A Disability: Another
Advocacy Priority." Options 3(1).
Kailes,
J. (1990). Aging With A Disability: Another Advocacy
Priority. Networker, Uniited Cerbral Palsy Association. 3.
Kailes,
J. (1991). Aging With A Disability: Another Advocacy
Priority. Aging, Disability and the Nation's Productivity, Switzer
Monograph,
National Rehabilitation Association.
Kailes,
J. (1992). "Aging With A Disability: Educating
Myself." Generations, Journal of the American Society on Aging XVI(1).
Kailes,
J. (1992). Aging With A Disability: Educating
Myself. Aging and Disabilities: Seeking Common Ground, Editors. A.
Eustis,
Baywood Publishing Company, Inc. Amityville, New York.
Kailes,
J. (1995). "Fit to be Tried." Mainstream
19(9): 37-46.
Kailes,
J. (1995, 1997, 1998, 2000). Health, Wellness and
Aging with Disability, KAILES - Publications.
Kailes,
J. (1995). "Midlife Cripdom: Getting Fewer
Miles per Gallon?" The Disability Rag 16(4).
Kailes,
J. (1996, 1997, 1998, 2001, 2002). Be a Savvy Health
Care Consumer Your Life May Depend on It!, Edition 5, 1st Edition 1997,
KAILES
- Publications.
Kailes,
J. (1998). Managing Your Own Health Care - You've
got to be a Savvy Consumer to Make Sure Your Needs are Met. MAINSTREAM.
22:
31-34.
Kailes,
J. (1999). Bridging the Great Divide Independent
Living and Health Care: Systems Change Strategies and
Resources--Learning from
the Trenches., ILRU Houston, TX,
http://www.ilru.org/ilnet/ilnetbks.html.
Kailes,
J. (2000). Can Disability, Chronic Conditions,
Health and Wellness Coexist?, KAILES - Publications, 6201 Ocean Front
Walk,
Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html,
jik@pacbell.net., http://www.ncpad.org/wellness/fact_sheet.php?sheet=106
Kailes,
J. (2001). Aging with Disability - Good News and Bad
News. Western U-View. XX: 17.
Kailes,
J. (2001). Health Care Providers And Health Care
Consumers:The Complaint Gap, KAILES - Publications.
Kailes,
J. (2001). Health and Wellness for Women With
Disabilities. Orchid. Summer Edition, NCODH, CB#8185, UNC-CH, Chapel
Hill,
NC 27599-8185.
Kailes,
J. (2001). Making the Most of Your 15 Minutes.
Orchid. Summer Edition, NCODH, CB#8185, UNC-CH, Chapel Hill, NC
27599-8185: 54.
Kailes,
J. (2002). Are you an active partner in your health
care? The IEHP Pulse, Member Newsletter, 303 E. Vanderbilt Way, Suite
400, San
Bernardino, CA 92408. 13: 8.
Kailes,
J., Richards, L., Heinsohn, D., Lin, R., Shepard, R.
(1999). Teleconference: Bridging the Great Divide - Independent Living
and
Health Care: Individual Services, Advocacy and Resources. Houston, IL
Net:
NCIL/ILRU, 2323 S. Shepherd, Suite 1000, Houston, TX 77019.
Premo,
B., Kailes, J., Schwier, E., Richards, C., (2003).
Adults with Disabilities in Medi-Cal: The Beneficiary Perspective,
Medi-Cal
Policy Institute, 476 Ninth Street, Oakland, CA 94607, Tel:
510.286.8976, Fax:
510.238.1382, http://www.medi-cal.org/topics/view.cfm?itemID=21512.
Kailes,
J., Shimomura, S., McGory, R., Premo, B. (2003).
Pharmacy Times, Communicating with Your Deaf and Hard-of-Hearing
Patients,
September 2003, http://www.pharmacytimes.com.
Story,
M., Winters, JMW.,Premo, B., Kailes, J., Winters, JM.
(2003). Understanding Barriers to Healthcare Caused by Inaccessible
Medical
Instrumentation. In Proceedings of RESNA 2003 International Conference.
Arlington, VA: RESNA Press.
Kailes,
J. Emergency Health Information: Savvy Health
Care Consumer Series,2004. Published and
distributed by
Center for Disability Issues and the Health Profession, Western
University of
Health Sciences, 309 E. Second Street, Pomona, CA 91766‑1854, Phone:
(909) 469‑5380,
TTY (909) 469-5520, Fax: (909) 469‑5407,
www.hfcdihp.org.
Kailes,
J., The Health Care Partnership: Barriers to Care-
Part 2: The Consumer's Viewpoint, in: Kemp, B., Mosqueda, L., Ed.
(2004). Aging
with a Disability: What the Clinician Needs to Know, John
Hopkins
University Press.
Winters,
JMW., Story, M., Barnekow, K., Premo, B., Kailes, J.,
Schwier, E., Winters, JM. (2004). A Delphi Study to Develop a National
Survey of
Accessibility of Medical Instrumentation. In Proceedings of RESNA 2004
International Conference. Arlington, VA: RESNA Press.
Winters,
JMW, Story, MF, Barnekow, K, Premo, B, Kailes, JI,
Schwier, E, Winters, JM (2004). A National Survey of Accessibility of
Medical
Instrumentation. In Proceedings of RESNA 2004 International Conference.
Arlington, VA: RESNA Press.
Kailes,
J., Mac Donald, C. ADA Resources, 2004.
Published and distributed by the Center for Disability Issues and the
Health
Professions, Western University of Health Sciences, 309 E. Second
Street,
Pomona, CA 91766‑1854, Voice-909.469.5213/TTY-909.469.5520, available
at www.cdihp.org/products,
Email: ahcs@westernu.edu.
Kailes,
J., Mac Donald, C. Importance of Accessible
Weight Scales, 2004. Published and distributed by the Center for
Disability
Issues and the Health Profession, Western University of Health
Sciences, 309 E.
Second Street, Pomona, CA 91766‑1854,
Voice-909.469.5213/TTY-909.469.5520, Fax
909.469.5503, available at www.cdihp.org/products) Email: ahcs@westernu.edu
.
Kailes,
J., Mac Donald, C. Choosing &
Negotiating an Accessible Business Location, 2004. Published and
distributed by the Center for Disability Issues and the Health
Profession,
Western University of Health Sciences, 309 E. Second Street, Pomona, CA
91766‑1854,
Voice-909.469.5213/TTY-909.469.5520, Fax 909.469.5503, available at www.cdihp.org/products,
Email ahcs@westernu.edu
.
Kailes,
J., Mac Donald, C. Health Care Facilities
Access, 2004. Published and distributed by the Center for
Disability Issues
and the Health Profession, Western University of Health Sciences, 309
E. Second
Street, Pomona, CA 91766‑1854, Voice-909.469.5213/TTY-909.469.5520,
available
at www.cdihp.org/products,
Email: ahcs@westernu.edu
.
Kailes,
J., Mac Donald, C. Importance of Accessible
Examination Equipment, 2004. Published and distributed by the
Center for
Disability Issues and the Health Profession, Western University of
Health
Sciences, 309 E. Second Street, Pomona, CA 91766‑1854,
Voice-909.469.5213/TTY-909.469.5520,
Fax 909.469.5503, available at www.cdihp.org/products) Email: ahcs@westernu.edu
.
Kailes,
J., Mac Donald, C. Improving Accessibility
with Limited Resources 2004. Published and distributed by
the Center
for Disability Issues and the Health Profession, Western University of
Health
Sciences, 309 E. Second Street, Pomona, CA 91766‑1854,
Voice-909.469.5213/TTY-909.469.5520, Fax 909.469.5503, available at www.cdihp.org/products,
Email: ahcs@westernu.edu
.
Kailes,
J., Mac Donald, C. Tax Incentives for
Improving Accessibility, 2004. Published and distributed by the
Center for
Disability Issues and the Health Profession, Western University of
Health
Sciences, 309 E. Second Street, Pomona, CA 91766‑1854,
Voice-909.469.5213/TTY-909.469.5520, available at www.cdihp.org/products,
Email: ahcs@westernu.edu
.
Kailes,
J., Mac Donald, C. Tools for Decreasing
Health Care Barriers, 2004. Published and distributed by the
Center for
Disability Issues and the Health Profession, Western University of
Health
Sciences, 309 E. Second Street, Pomona, CA 91766‑1854, voice/TTY (800)
832-0524, available at www.cdihp.org/products.html, Email: ahcs@westernu.edu
.
Kailes,
J. Shield Your Health: Making Preventive
Health Care Work for You – A Resource Kit for People with Physical
Disabilities, 2005. Published and distributed by the Center
for Disability
Issues and the
Health Professions, Western University of Health Sciences, 309 E.
Second
Street, Pomona, CA 91766‑1854; voice/TTY 1-800-832-0524; e-mail
ahcs@westernu.edu.
Center
for Disabilities Issues & the Health Professions,
Center for Health Care Strategies, and The Lewin Group, (2005)
Developing
Health Plan Performance Standards for Serving People with Disabilities
in
Medi-Cal, www.chcf.org.
Kailes,
J. (2005). Workshop on Disability in America, an
New Look: summary and papers: based on a workshop of the Committee on
Disability in America: a New Look, Board on Health Sciences Policy.
Field, M.,
Jette, J.M., and Martin, L. editors, Chapter K - A User's
Perspective on Midlife (Ages 18-65) Aging with Disability,
Institute of
Medicine.
Palsbo,
S., Kailes, J. (2006). "Disability-Competent
Health System." Disability Studies Quarterly26(2)..
Kailes, J.I. (2006). The Patient’s
Perspective on Access to Medical Equipment. In J. Winters and M. Story
(Ed.),
Medical Instrumentation: Accessibility and Usability Considerations
(pp. 3-14).
Boca Raton, FL: CRC Press.
Winters, JMW., Story, M., Barnekow,
K., Kailes, J., Premo, B., Schwier, E. (2006). Results of a
National
Survey on Accessibility of Medical Instrumentation for Consumers. In J.
Winters
and M. Story (Ed.), Medical Instrumentation: Accessibilty and Usability
Considerations
(pp. 15-32). Boca Raton, FL: CRC Press.
Kailes,
J., Premo, B., & Richards, C. (2006). Toward a
New Health Care Policy: Accessible Medical Equipment and
Instrumentation. In J.
Winters and M. Story (Ed.), Medical Instrumentation: Accessibility and
Usability Considerations (pp. 49-70). Boca Raton, FL: CRC Press.
Kailes,
J., Premo, B., & Richards, C. (2007).
Exploring Key Issues on Accessible Medical Equipment and
Instrumentation:
Summary of Meetings,Published and distributed by Center
for
Disability Issues and the Health Profession, Western University of
Health
Sciences, 309 E. Second Street, Pomona, CA 91766‑1854, Phone:
(909) 469‑5380,
TTY (909) 469-5520, Fax: (909) 469‑5407, Email: ahcs@westernu.edu,
www.CDIHP.org
Kailes, J.I
& Lee,
M. (2009) Mammography: Addressing
Equipment Design, Published and distributed by Harris Family Center for
Disability
and Health Policy, Western University of Health Sciences, Pomona,
CA www.HFCDHP.org, jik@pacbell.net
Kailes, J.I
& Lee,
M. (2009) Importance of Accessible Mammography Equipment, Published and
distributed by Harris Family Center for Disability and Health Policy,
Western
University of Health Sciences, Pomona, CA www.HFCDHP.org, jik@pacbell.net
Gardner
- Bonneau Au, D.J. & Kailes, J.I. (2010). Winter, Accessible
Health Care: More Than
Just Getting Through the Door Ergonomics In
Design. Winter 2010, 5-10
Story,
M., Kailes, J., Mac Donald, C. (2010). The ADA in action at
health care facilities Disability
and Health
Journal
(3) 245-252
Suzuki,
R.,
Peterson, J., Weatherby, A., Buckley, D., Walsh, E., Isaacson Kailes,
J.,
Krahn, G.
(2010) Using
Intervention Mapping to Promote the Receipt of Clinical Preventive
Services
Among Women with Physical Disabilities. Health Promotion Practice
published
online 8 November 2010DOI: 10.1177/1524839910382624,
http://hpp.sagepub.com/content/early/2010/11/06/1524839910382624
Kailes,
J.I., ( 2011). Quality Services for
People with Disabilities and Activity Limitations, ( 4 part online
training package), Harris Family Center for Disability and
Health Policy, Western University of Health Sciences, (909) 469-5385, hfcdhp@westernu.edu,
https://www.hfcdhp-training.org/
Part 1,
defines “disability” and “activity
limitations” and looks at how common disability is. It also explores
how
disability increases with age.
Part 2
looks briefly at the Americans with
Disabilities Act of 1990 and how it impacts health care services.
Part 3
considers how health care worker's
attitudes and beliefs toward people with disabilities and activity
limitations
may affect the quality of health care.
Part
4, explores issues involving physical, communication, and medical
equipment
access—particularly, the “hassle factors” experienced by people with
disabilities and activity limitations when trying to obtain health care.